WHO WE ARE

In the summer of 2004 four babies with Down syndrome were born at Warwick Hospital.

A year later one of those mums, Nicola Enoch, started The Ups of Downs, a fortnightly group for babies with Down syndrome. Nicola took the Symbol co-worker course and attended the Down Syndrome Education International’s monthly Early Intervention Groups in Southsea and started putting ‘early intervention’ structure to the local weekly meetings. The group soon flourished as parents valued the importance of sharing information and experiences. The rest, as they say, is history.

We are a registered charity with four Trustees, all parents of a child with Down syndrome. We run weekly sessions for the different age groups; pre-school, primary and secondary school aged. Regular training courses for parents and professionals, termly twilight training for teaching professionals, socials and information sessions for parents and at every gathering parents are able to discuss the high points, issues and any challenges that they are encountering.

OUR TRUSTEES

Nicola Enoch

Mum to Tom born in 2004 who started at his local mainstream secondary school September 2016. Nicola is the driving force behind The Ups of Downs and is also active within the national Down syndrome community. Nicola and her husband John run a property business, enjoy watching sport, eating good food and travelling.

Caroline Warren

Mum to Alex born in 2004 who attends his local High School along with his older brother. Caroline has a background in agricultural and property development and management, she is a Trustee of another small charity and a Director of two South Warwickshire / North Gloucestershire companies.

Jon Lee

Dad to Maisie, Sophie and James. Jon is a primary school teacher of 4 years, having previously worked in sports marketing. Jon is particularly keen to promote inclusion in schools. He is a sports fanatic, enjoying watching and playing football and when his body lets him running marathons! Jon recently joined a band with friends to show it’s never too late to try something new!

Jeanette Proctor

Jeanette is mum to Oli born in 2011 who attends his local village mainstream primary school with his older sister.  Jeanette has a background in business organisation, previously with a sporting and equestrian basis, but over the last 10 years has specialised in Early Years settings.  She maintains close links with the Warwickshire County Council Early Years and Portage Services and is also a school governor.

OUR VALUES

Promote inclusion – people with DS are at the heart of everything we do.

Be collaborative – we work in partnership with parents, professionals and experts.

Challenge – we remove barriers to our children’s progress and provide innovative solutions.

Empower – we provide knowledge, resources, training and confidence to ensure sustained results.

STRATEGIC OBJECTIVES

Raise awareness.

Change attitudes.

Make a difference here & now.

Support friendships & relationships.

Improve health.

Give children the best start in life.