WHO WE ARE

In the summer of 2004 four babies with Down syndrome were born at Warwick Hospital.

A year later one of those mums, Nicola Enoch, started The Ups of Downs, a fortnightly group for babies with Down syndrome. Nicola took the Symbol co-worker course and attended the Down Syndrome Education International’s monthly Early Intervention Groups in Southsea and started putting ‘early intervention’ structure to the local weekly meetings. The group soon flourished as parents valued the importance of sharing information and experiences. The rest, as they say, is history.

We are a registered charity with three Trustees, all parents of a child with Down syndrome. We run weekly sessions for the different age groups; pre-school, primary and secondary school aged. Regular training courses for parents and professionals, termly twilight training for teaching professionals, socials and information sessions for parents and at every gathering parents are able to discuss the high points, issues and any challenges that they are encountering.

OUR TRUSTEES

Nicola Enoch

Mum to Tom born in 2004 who started at his local mainstream secondary school September 2016. Nicola is the driving force behind The Ups of Downs and is also active within the national Down syndrome community. Nicola and her husband John run a property business, enjoy watching sport, eating good food and travelling.

Alex Rigler

Mum to Erin born in 2007 who attends her local junior school. Alex works for a charity in Coventry supporting vulnerable families in the city. Her recent projects include helping families negotiate the Education Health and Care Plan process and supporting adults with learning disabilities into work.

Caroline Warren

Mum to Alex born in 2004 who attends his local High School along with his older brother. Caroline has a background in agricultural and property development and management, she is a Trustee of another small charity and a Director of two South Warwickshire / North Gloucestershire companies.

OUR VALUES

Promote inclusion – people with DS are at the heart of everything we do.

Be collaborative – we work in partnership with parents, professionals and experts.

Challenge – we remove barriers to our children’s progress and provide innovative solutions.

Empower – we provide knowledge, resources, training and confidence to ensure sustained results.

STRATEGIC OBJECTIVES

Raise awareness.

Change attitudes.

Make a difference here & now.

Support friendships & relationships.

Improve health.

Give children the best start in life.